"We, as Christians, can take times of hardship and allow them to distance us from God OR we can acknowledge that He is sovereign and continue to honor Him even when things don't go our way. This is certainly difficult to do and we have times in which we don't necessarily feel all happy and peaceful inside as we would like. Sometimes the best we can do is say 'Father, I'm in pain and I don't understand why this is happening. But I trust You in the good times and the bad and I ask that you would be with us through this hardship'."
-Jake Pendleton, father of Baby Jude
Over the course of the last six weeks, as Ryan and I eagerly anticipated our 18 week ultrasound, I have become highly sensitive to any and every story involving babies. We have celebrated the pending adoption of Emerson, a baby girl brought to live with her half brother and their wonderful family. We have cried with some of Ryan's friends as they face a very similar situation to the one we faced when they told us our baby had a cystic hygroma. Though I have never met them in person, I know how that feels, to have your worst fears come true.
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Lastly, we have been following the incredible struggle of a baby boy from Dothan, Alabama whose airways will not allow him to breathe on his own. For weeks, we have prayed for and watched the posts about Baby Jude, but yesterday his father posted that he was not doing well and the hospital has encouraged him to come to the NICU despite his own illness.
Seeing the struggles these other families have endured has encouraged us that we are not alone in our wait and that there is still hope! As Jude's father put it, "Sometimes the best we can do is say 'Father, I'm in pain and I don't understand why this is happeneing. But I trust You in the good times and the bad and I ask that you would be with us through this hardship.'" That is so hard to do sometimes when it means holding out everything that you love in your hands and opening them up to give them back to the Lord. Ryan has used this analogy when we pray, saying, "Lord, please let us hold everything with open hands." I want my heart to do that, to give freely back to the Lord even when I don't understand.

Last Monday, Ryan and I went to the doctor for the ultrasound we had been praying we would be able to reach. After the genetic counselor had given us so many possible outcomes in April, we were nervous for our little one. How would the baby look? Would it be whole? How would the day end? So many questions rattled our brains as we went into the little room with the sonogram equipment.
Ryan held my hand as the technician put the gel on my tummy and told us that she would not be able to tell whether or not things on the ultrasound look good. We would need to wait for the doctor to answer our questions. Soon after, we caught our first glimpse of our tiny baby in nearly two months. Tears came to my eyes seeing our little one squirming and rolling around. Silently, I sent about a dozen new prayers up to the Lord.
Despite her previous declaration that she would be unable to label anything as "good" or "bad", I think the technician sensed our nervousness and ended up saying things like, "That's good." Since it was an anatomy ultrasound, her job was to label the different body parts. We got to see our baby's pinky fingers, toes, elbows, and the nose Ryan says looks like me already. The tech asked if we want to know the sex, and we said we did. Just as I had suspected, we are having a baby girl!
During the sonogram, the nurse came in with the results of the noninvasive prenatal test I had done two weeks prior. She excitedly told me that they had come back negative for Down's Syndrome, Trisomy 13, and Trisomy 18, the most feared of the chromosomal abnormalities. A weight shifted off my chest to know that our baby did not (most likely) have anything wrong with her genetic code. The doctor later explained to us that this particular test did not check directly for Turner's Syndrome, but that the lab states they will report any abnormal findings with regard to sex chromosomes. Because there was nothing in the results to suggest such findings, we can assume that the baby's chromosomes appeared to be normal. Beyond that, the doctor, who we had never seen before, told us that upon looking at our ultrasound images, if he had not known the baby's previous diagnosis, he would have told us we have a healthy looking baby girl. Even though she is measuring a little on the small side, her fluid levels are down to normal.
The whole visit was a whirlwind - I left feeling like I'd just ran a race. My heart raced and my breath was labored. As soon as we got into the car, I burst into tears. I'm still in awe of how this could have happened, how we could get such a devestating report one day, and then weeks later get nearly an opposite one. I am still trying to understand how our baby seems to be healthy while so many other babies are not. In my head, I know the answer, that God's will is perfect and not always the way we want it to be. But in my heart, I am still struggling to accept this. The Lord is continuously working in me to be at peace in His arms. I know He is holding baby Jude there along with our little girl.
This pregnancy, while still only 19 weeks along, has been a journey through which God has taught us more than I had possibly imagined. It is still difficult for me to process because my mind wants to put the Lord's will into a box that makes sense to me. But I know it doesn't work like that. And I am forced to remember Jake Pendleton's words. The Lord is Sovereign, and it is our delight to honor Him in the good times and the bad times because He is always there for us. That is truly the point.
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| Baby Jude during the beginning of his stay at the Boston hospital Baby Jude's Go Fund Me |
More than anything, Ryan and I desire for our daughter and for all of our future children to serve the Lord with their lives. Even though she has been in the world for such a short time, our baby girl has already touched so many and been touched by countless prayers and blessings. She has felt the hand of the Lord heal her, a physical act that mirrors the grace that God has always shown to His people. From The Fall to The Cross, Grace has been evident and continues to work in the lives of people like Emerson, like Jude, like all babies with cystic hygromas, and like us.
We wanted our baby's name to reflect this manifestation of love, so we have chosen the name Genesis Grace. Genesis because it means, "In the beginning," and Grace because from the very beginning, there was grace.

























